LOUISE'S STORY

Louise's Story

When my doctor James Suen first told me about Louise Brent during a check up appointment, I didn't have time for any initial reaction. He asked me if I wanted to meet her, and she walked in minutes later with a gusto of a young girl and the seasoned self assurance of a sage. We spoke briefly but the impression she made stays with me. She had some severe disfigurements to her face but had just been through a quite radical procedure to remove large sections of her AVM and begin reconstructing her face. So through the bandages, swelling and discomfort was a smile, joy and optimism. Louise was in the U.S. receiving treatment by one of the best surgeon's in the world for her disorder. She was connecting with new people like other survivors including me. She was as determined as ever to fight, for her life, her peace and her health.

Hometown: York, England
When I was younger, I wanted to be: A hairdresser (goodness knows why)
In 10 years, I will: Be AVM free and have a full, active life.
My life long goal is to: Be a good grandmother to my four grandsons. 
If I could change one thing about the world, I would: Have no more wars and more women running countries.
My favorite quote/scripture/affirmation statement is: "Never say never."

1) Describe the type of medical challenge you have? What was the first sign? 
I have a facial AVM. The first sign was a faint red line down my forehead which disappeared. Then when I was 45, I noticed a pulse in my cheek.

2) How did you eventually come to receive treatment?  
I received incorrect treatment in England, and the embolizations were a catastrophe. I researched and flew out to the United States to Dr Suen. 
3) Who are/were your main doctors, where are/were you treated and how has your care been?  
My surgeon now is the wonderful Dr. Suen in Little Rock who is amazing and got my health back.
4) How do you feel your health will progress in the future?
I hope surgery will put my face right and rid me of my AVM.

5) How has having a medical challenge changed your life?   
It's made me appreciate life and determined to lead a normal life. It's made me aware of how short life can be.

6) What has been your biggest challenge in the battle with a medical challenge?
It has been finding the right treatment and docto.

7) What do you think a documentary about those surviving a medical challenge can achieve? 
That you're not alone and never give up hope Hope, advice and comfort 

8) What are your hopes for the future of research for your medical challenge?
Research into drugs to save the need for invasive surgery.

9) What has been the biggest lesson you've learned throughout your journey thus far?  
Don't always trust medics. Do research and follow your own instincts. Never say never!  

10) What is your proudest accomplishment?
Having my children and now four grandsons. My daughters. Working with young offenders and unemployed and helping them. Giving, helping and listening to others is so rewarding. Nothing can make me happier!